If you want to study more about the Long QT gene and recent articles, a very good reference is Mayo Clinic. I want to keep studying this. I pray that there’s a possibility for my children and grandchildren to wipe this heart defect out of the family line! Here is a link to some of his work:
http://mayoresearch.mayo.edu/mayo/research/ackerman_lab/
I am reading studies which Dr. Ackerman at Mayo Clinic has done. Very interesting findings! He is a world wide expert.
Let me know and follow on this blog, if you would like to share your family stories and anything you have done in your family concerning the Long QT. I want to create a network of people who are interested, so we can help and support one another.
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About Myrna Folkert
Myrna is an author who desires to use her gifts to glorify God. She's created this blog to tell stories of her childhood, musings about life, motherless daughters, grief and loss, faith in God, her family history, and facts about the Long QT syndrome. She also has a hearing condition called Tinnitus. Doing interviews with motherless daughters like herself are of great interest. Join in discussions by following this blog and commenting. She would love to hear your stories about life. Myrna is a Christ follower, wife, mother, sister, friend, aunt, and cousin. She was an elementary school teacher for 27 years; now works in her church, and a few other volunteer activities such as Hospice doing "Life Reviews" and Vigils. Myrna loves to read, write, listen to music, go to concerts, and take pictures. Her favorite pastime is boating with her husband near the beautiful shores of West Michigan.