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Also in my case, Dr. Ackerman said my “numbers”, on the Long QT interval, did not warrant getting a defibrillator. When we talked to Dr. Ackerman a few years ago, I understood there weren’t any medicines which help. So maybe this is a very recent discovery. So, we’ll keep investigating.
Long QT syndrome (LQTS) is a heart rhythm disorder that can potentially cause fast, chaotic heartbeats. These rapid heartbeats may trigger a sudden fainting spell or seizure. In some cases, your heart may beat erratically for so long that it can cause sudden death.
You can be born with a genetic mutation that puts you at risk of long QT syndrome. In addition, certain medications and medical conditions may cause long QT syndrome.
Long QT syndrome is treatable. You may need to limit your physical activity, avoid medications known to cause prolonged Q-T intervals or take medications to prevent a chaotic heart rhythm. Some people with long QT syndrome need surgery or an implantable device